Quick Summary
NHS Wales has launched a digital mental health service in collaboration with a clinic to assist patients dealing with the psychological effects of lymphoedema and lipalgia syndrome.
Key Information
- Lymphoedema: A chronic condition caused by a malfunctioning lymphatic system, leading to swelling, primarily in the limbs.
- Lipalgia Syndrome (Lipoedema): A condition characterized by an abnormal accumulation of fat, mainly affecting women, particularly in the lower body.
- Psychological Support Service: Established by the Lymphoedema Wales Clinical Network (LWCN) in response to patient feedback highlighting emotional struggles associated with these conditions.
Patient Insights
- Many patients reported experiencing depression, anxiety, and concerns about their appearance alongside physical symptoms.
- The new service includes two psychologists who provide support, complemented by referrals to SilverCloud Wales, an online platform offering cognitive behavioral therapy (CBT) courses.
Expert Commentary
Dr. Jayne Williams, national lymphoedema consultant psychologist for LWCN, emphasized the importance of accessible psychological therapies, stating:
“Our goal is to provide timely support to prevent patients from reaching crisis points. SilverCloud’s online format allows us to reach more individuals flexibly, fitting into their busy lives.”
Service Accessibility
- Approximately 25,000 individuals in Wales utilize LWCN services.
- Local health boards can refer patients to the psychology service, which is managed by Swansea Bay University Health Board.
- Anyone aged 16 or older in Wales can self-refer to SilverCloud without needing a GP visit.
Feedback and Future Developments
Fionnuala Clayton, NHS Wales online CBT project manager, noted that the referral pathway was developed based on patient feedback from a ‘Living Well with Lymphoedema’ event, where participants expressed a desire for accessible support to enhance resilience and maintain a fulfilling life despite their conditions.
Additional Initiatives
- Cwm Taf Morgannwg University Health Board is set to launch a digital health assessment platform focused on improving patient outcomes, initially targeting heart failure and lymphoedema services.
- Since September 2024, mental health support through SilverCloud has also been extended to new and expectant parents in Wales.
Conclusion
This innovative digital mental health service represents a significant step forward in addressing the psychological needs of lymphoedema and lipalgia syndrome patients, ensuring they receive the support necessary to manage both their physical and emotional health effectively.